About Us

Learn more about our mission to make a positive impact in the sickle cell community and beyond through our workshops, resources and education.

Unlocking the world of self advocacy

Self-advocacy is one of the most powerful tools a person living with sickle cell disease can develop. It empowers patients to communicate their needs, make informed healthcare decisions, and confidently navigate complex medical systems. By teaching self-advocacy to patients, caregivers, and community allies, we create a stronger support network that promotes better communication, reduces barriers to quality care, and helps ensure that every individual is heard, respected, and treated with dignity. When everyone understands how to advocate effectively, we build a community that is better equipped to improve health outcomes and enhance the quality of life for those affected by sickle cell disease.

Changing Lives

Empowering Warriors to advocate for themselves and view their sickle cell journey from a place of strength and confidence.

Building Community

Creating new connections with sickle cell warriors, caregivers and community allies to support and encourage those living with this complex disease.

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EDUCATE
Learn about Sickle Cell

SCRIPT empowers Warriors, caregivers, and community allies with accurate, practical education about sickle cell disease and its impact on daily life. Together, we're building a stronger, more informed community where every Warrior has the opportunity to thrive.

ADVOCATE
Confident Warriors

SCRIPT teaches Warriors to become confident self-advocates by developing the knowledge, communication skills, and confidence needed to speak up for themselves in every healthcare setting. We empower individuals to understand their rights, communicate their needs effectively, and partner with their healthcare team to achieve the best possible outcomes.

CONNECT
Build Community

SCRIPT believes no Warrior should face sickle cell disease alone. We foster a supportive community where Warriors, caregivers, and community allies can connect, share experiences, encourage one another, and grow stronger together.

Make a Difference Today

Your involvement matters. Support SCRIPT by making a donation.

Every donation counts and helps us bring education, resources and community engagement. Together, we can create a better tomorrow for sickle cell patients and their supporters.

Donate Today

Our Vision & Mission

Our mission is to empower patients with sickle cell disease and their caregivers to become confident self-advocates in healthcare settings. Through education, interactive tools, and community support, we aim to equip them with the skills and knowledge necessary to effectively communicate their needs, manage their healthcare experiences, and improve their overall well-being. By fostering an environment of learning and empowerment, we strive to enhance their capacity for self-advocacy and inspire a supportive community committed to mutual growth and understanding.

  • Changing lives - empowering Warriors with education, resources and tools for self advocacy.
  • Support our community outreach - contribute to the programs that are changing the lives of Warriors every day
  • Partner with SCRIPT - volunteer, donate and attend events
  • Join our communities on social media - follow us on Facebook, Instagram and Threads
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